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weakfishtoday at 11:44 AM1 replyview on HN

My comment is more of a complaint than a discussion so apologies, but I was disappointed recently because I did at an at home test and scored borderline. I was hopeful that it would be sleep apnea so I could go about solving my bad sleep, but a lab test showed conclusively that I didn’t have it.

I got checked out initially because I mentioned to my sister that I didn’t recall the last time I’d woken up and felt refreshed all day, even with 8+ hours, and she said “…that’s not good, get that checked out.”

Back to the drawing board :(


Replies

smj-edisontoday at 2:07 PM

Chronic tiredness can be such a hard thing to figure out, sorry you've been going through that! Is it sleepiness (as in can fall asleep at any point of the day), or fatigue (as in non-restorative sleep, brain fog, feeling exhausted, etc)? I've had chronic fatigue (non syndrome) for six years now, so I'm pretty familiar with how obnoxiously long it takes to get answers. Some things to look into:

Do a full polysomnogram with MSLT: this will check for sleep apnea, restless leg syndrome, narcolepsy, and idiopathic hypersomnia

Look into ME/CFS if you have post exertional malaise (pretty much you cross some invisible line in exertion followed by a delayed crash).

Look into MCAS if you also have strange allergy symptoms. I have MCAS, though tbh I didn't really have that many symptoms until I looked at Dr. Afrin's free chapter on MCAS.

Maybe fibromyalgia, but you didn't mention muscle pain, so it probably doesn't apply.

Obviously depression can cause somatic symptoms, so that's worth checking, but I think people jump to that conclusion too soon.

Note that a lot of these conditions don't really have tests, so it's really tricky to get a diagnosis. It takes finding a doctor who's willing to recognize them and give a diagnosis.