logoalt Hacker News

ACCount37today at 10:46 AM1 replyview on HN

Not giving the data to researchers means not getting the scientific benefits from that data. Which was the point of collecting that data in the first place.

Reckless harm prevention is the root of many evils.


Replies

nxobjecttoday at 11:43 AM

As a biostatistician who's touched epidemiological studies, I'd argue losing the trust of participants and the public is one of the biggest threats to the viability of the whole research enterprise. It's reckless to jeopardize that as well. Conversely, this dataset will be mined for at least 30-50 years - there are an infinite number of questions that can be asked of this dat. Given that timescale, I think a little delay here is acceptable.